COVID-19 and Anxiety
Loved ones in COVID isolation
What We Can Do for Them
My 88-year-old mother lives in her own apartment in a senior living building across the country. But even if I lived closer, I would not be able to see her, because no visitors are allowed right now. My mother has dementia with poor short-term memory and is not a reliable source of information. Her building’s website has no information, so I don’t know what is happening. How many coronavirus cases are there? Is the staff still able to provide the care my mother needs? Who is tracking how she is doing? It feels like a limbo of uncertainty and worry. I do know from phone calls that my mother is deeply lonely and lost in what feels like an unsupportable boredom.
Our story, while it may differ in some details, is the story playing out across the country and the world as measures taken to combat the coronavirus keep us from visiting our loved ones in senior living, nursing homes, hospitals, and other facilities. We don’t have the information we want, we can’t be there to advocate for care, and most importantly, we can’t provide the simple comfort of our loving presence and touch.
What can we do to help our loved ones and ourselves?
Helping loved ones in practical ways
Find out what is happening in the building
- Determine if there are reporting systems already in place and how can you use them to stay informed. If they don’t exist, ask if you can work out a way to get regular updates about your loved one.
- If your loved one is in a senior living, nursing home, or similar facility, encourage the institution to post general daily updates on their website or via social media.
- In some states, institutions are mandated to report COVID-19 cases. Do a web search to see if this information is available in your state.
Support your loved one's practical needs
- Arrange for grocery delivery, if allowed. (For now, my mother’s building is allowing food deliveries, and she feels more secure with food in the fridge.) If your loved ones are getting all their food provided, you can still send some of their favorite treats. Many grocery stores offer delivery or you can use a service, like Instacart: do a web search for grocery delivery options in the area. Note that delivery slots can be hard to find right now, so you may have to be persistent in checking each day, or investigate different options.
- Drop off a homemade meal or treat if you live in the same town. This will offer a welcome variety from their regular meals and let them know you are thinking of them.
- Check that they are getting medications delivered in a timely manner. You may have to help them arrange delivery with their pharmacy or insurer if they were previously picking them up in person.
- Ask about banking and paying bills—do they have what they need in place to do this, or do they need some help arranging different payment options?
Offer activities to fill some time
Depending on your loved one’s energy and cognitive abilities, you can offer suggestions to pass their time.
- Have a good book delivered. If you search online, you can find a wide variety for people of all cognitive abilities, including books written specifically for people with dementia or Alzheimer’s. Don’t forget books with beautiful photos of nature, birds, or perhaps favorite cities or places from travels.
- Consider if a puzzle or simple art or craft activity might be appealing. Adult coloring books and pencils or paint by number kits are one option. As a bonus, you can do the same activity and share the experience and your results.
- Recommend TV or radio shows or podcasts that they might find interesting.
- Suggest they join a weekly group phone call on a subject of their choice through Well Connected. This community is made up of participants, staff, facilitators and other volunteers who offer free group phone calls on hundreds of interesting topics.
- Set up a tablet or computer so your loved one can make a video call or watch a movie with just a touch or two. You can load it up with favorite movies or TV shows. There are also devices created specifically for older, less tech-savvy folks you can research.
If your loved one is somewhat tech-savvy, you can also:
- Set up virtual board games you can play together. We offer two options in the References at the bottom of the page.
- Do an online art class together. The activities suggested for children are often great fun for adults as well—and simple enough for anyone to do. We offer a couple of suggestions in the references and you can find lots of other options by searching the internet. You might have to order or deliver some supplies, so check out what is needed beforehand. Then you can each tune into the class and while on the phone with each other.
Expressing Love from a Distance
I am limited by my mother’s cognitive and memory issues, which are not uncommon among the elderly and may be aggravated by fear and loneliness. Illness or trauma can also limit people’s energy and ability to communicate.
- Send or deliver cards, printed photos, or homemade art (especially from the grandchildren). Frank Benett, a volunteer chaplain in acute and long-term care facilities, knows firsthand of the joy these cards bring “because every time I visit they proudly, happily show me all that their family has sent or dropped off.” In addition, you and your family will have the joy of expressing your love.
- Explore what you could have delivered beside food. Flowers, a plant, or even balloons might brighten things up.
- Connect by video. Inquire if there is anyone on staff who can bring a device to your loved one so you can do a video chat.
- And most importantly, keep in touch by phone, each day, with the intention to just listen and be kind. To offer love. For some of us that might mean discovering new strategies for communicating (see Talking on the phone to someone with cognitive issues).
When a parent or other loved one has dementia or even mild cognitive impairment, it can be challenging to have a good phone call.
Your loved one may not remember what they have been doing so will have little they can share.
They could have trouble distinguishing their dreams or the TV shows they watch from reality, so they might relate strange tales that you have the urge to correct.
You may find them dwelling on negative experiences or complaints at length (people with dementia seem to retain their moods longer, so they may be stuck).
They might repeat themselves or ask the same question again and again. It can be sad and frustrating.
- Prepare yourself beforehand by thinking of incidents or events you can relate. Talk about these when your loved one asks repetitive questions or the conversation lags.
- Try leading questions to prompt memory—did you do the singalong today?
- Ignore your desire to correct or set things straight, and just focus on communicating your love and desire to talk to them.
- See your call as a way to brighten your loved one’s day. Retaining moods longer can help if you make it positive. Recall happy times you had together. Ask them what good memories they have. See if you can leave them with a sense of pleasant connection and love.
- Read to them from a book or publication you know they enjoyed at one time in their life. For example, if your loved one subscribed to the New Yorker magazine, but can no longer read, they might really enjoy you reading an article from that publication that reminded you of them. Or they may appreciate you reading from the Bible or another spiritual source.
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Talking about COVID-19
In this pandemic, we are all seeing that “there’s not a lot of room between any of us and the very edge.” Those are the words of Kate Bowler, Professor of Divinity and podcaster, who was diagnosed with incurable cancer five years ago, and has thought a lot since then about living with uncertainty.
As we reach out to our loved ones, this uncertainty and sense of being near the edge may become a somber backdrop. We can try to ignore it, but this may make our loved ones feel even more alone. Alternatively, we can lean into a courageous conversation that acknowledges their reality. Here are some tips.
Prepare ourselves. Before we engage, we need to make sure that we are ready to listen—with our full presence. This might mean that we take a few deep breaths or tune into the sensations of our body for a few minutes to collect our minds. It is not helpful to bring our own stress and worry into these conversations.
Acknowledge loss. We listen when they express how uncertainty and loss are impacting them (see the section on dealing with uncertainty for additional points about this). We want to avoid making promises that we or they will be able to control the outcome, but we can assure them that our goal, and that of their care providers, is to ensure love and comfort.
Allow emotions. Learn more about coping with loss.We can acknowledge their emotions. The classic stages of grief identified by Elisabeth Kubler-Ross are denial, anger, bargaining, sadness, and acceptance, and we all experience these in different ways and at different times. Along with this might come anxiety, especially if we are dealing with the loss or potential loss of someone we love. Allow your loved one to express these and other emotions as they arise, without judgment or needing to change them. Avoid trying to put a positive spin on fears and anxieties.
Use affirmative statements. Try one of these simple yet powerful statements to validate their feelings: I hear you. I appreciate how hard this is for you. It makes sense that you are feeling sad, lonely, angry… That sounds really hard. I love you. I'm going to check on you and be with you every step of the way in whatever form I can—on the phone, in spirit, in person whenever that is possible.
Ask how they coped in the past. If the moment seems right, chaplain Frank Bennett suggests that you can prompt your elder to talk about how they made it through adversity in the past. Many of them lived through the depression or other recession or a war: how did they cope? Their stories may demonstrate resilience and provide a lift to them—and you. And it helps us remember that hard times pass; that the pandemic won’t last forever.
What We Can Do For Ourselves
Dealing with Uncertainty
Kate Bowler has thought a lot about living with uncertainty. In her writing in the New York Times, she points out how it is the habit in our American culture to try to replace the real uncertainty of our human lives with a belief about the power of hard work and positive thinking to conquer all—even with something like cancer or the coronavirus.
But this pandemic knocks down our walls of certainty. We see the world with a new vulnerability, as Kate says, “without the Instagrammed filter of breezy certainties and perfectible moments.” Psychologist Claire Bidwell Smith, who writes about the role of anxiety in stages of grief, puts it this way: “Suddenly we must face the fact that there are absolutely no guarantees in life. Everything that once seemed sturdy is now fragile, particularly the people we love.”
We need to recognize that there is a limited amount we can do in the face of all this uncertainty and loss. Of course, we should identify what that limited action is and do it if possible, but then we need to let go of the rest, perhaps over and over again. And we need to recognize our limits and look for resources to support us as we try to cope with uncertainty and anxiety.
Judson Brewer, an MD and neuroscientist has found in his research that even simple in-the-moment mindfulness exercises significantly reduced anxiety. He suggests three simple steps:
- Pause. This helps keep the thinking parts of your brain active, so you can choose more helpful responses. Brewer notes: “Taking a moment to pause in stressful situations—whether that means you take three deep breaths or simply pay attention to the feeling in not-anxious parts of your body (like your feet or your hands)—helps ground you in calmer emotions.”
- Notice the impact of your calm. When you realize that calm feels a lot better than anxiety, you can start to create a habit, because our brains learn to perform the action that is most rewarding. The more you practice calm, the more it will become your norm.
- Take it one day (or one hour) at a time. When you notice that your brain is starting to spin out into future-oriented thinking and worry, remind yourself to pull your lens in. Do what needs to get done today. Tomorrow you can deal with what comes then.
Dealing with Anticipatory Grief
Alan Wolfelt, Director of the Center for Loss and Life Transition, writes that “alongside the physical pandemic, the coronavirus is creating a pandemic of grief, threatening everything we love.” Our hearts and minds are trying to prepare for what we might lose, which is sometimes called “anticipatory grief.”
I can relate directly to this. When my mother said there was a coronavirus case in her building, it felt as though she could die any day—and I would not be able to be with her. I worry that my mother will die alone, without anyone to ease her fear and loneliness.
To help us cope with this distress, Wolfelt recommends that we do many of the same things for ourselves that we do to support our loved ones. We can acknowledge the reality of the pandemic and honor all of our feelings. Naming them and expressing them—in conversations or through journaling—allows them to soften. He suggests four additional strategies.
Express gratitude
Woffelt explains that “having gratitude for what was and what is will help you foster hope for what will be.”
Be kind to yourself
Treat yourself with patience and compassion as you deal with this grief. Take care of yourself physically, emotionally, and spiritually.
Search for meaning
Our normal daily patterns are gone, and in this space questions about what we should be doing arise. What is important? Wolfelt suggests that we reflect and do whatever helps us feel joy, meaning, and purpose.
Reach out to others
When we are grieving, we need connection and support. Talk openly with those who care about you, and in turn offer your empathy to them.
In short
For our own sake, as well as for our loved ones, we do our best each day to offer practical and emotional comfort. We call, listen, provide resources and cheer, and above all let them know they are loved. We can and will find ways to make meaningful connections in spite of their isolation, taking care of those we love and ourselves, physically, emotionally, and spiritually.
Additional Resources and References
Activities
- Games That Make Social Distancing More Fun
- Games You Can Play with Friends While Stuck at Home
- 8 Online Art Classes
- Other Online Art Classes
References
Judson Brewer: Anxiety is Contagious
Kate Bowler: How to Live in the Face of Fear
Claire Bidwell Smith: The Missing Stage of Grief
Alan Wolfelt: Coronavirus and the Six Needs
Dementia Care Central: Communication Tips
Additional Resources for Minnesotans
MN Department of Health COIVD-19
MN Department of Health Long Term Care COIVD 19